Emory Univeristy of Medicine
URL: www.genetics.emory.edu/LSDC/lsdc_resources.php

FabrazymeŽ (agalsidase beta)
Email: fabry@genzyme.com
URL: www.fabrazyme.com
Phone: 617-768-9000, 800-745-4447

Fabry Community
Email: fabry@genzyme.com
URL: www.fabrycommunity.com
Phone: 617-768-9000, 800-745-4447

Fabry Registry
Email: fabryregistry@genzyme.com
URL: www.fabryregistry.com
Phone: 617-591-5500, 800-745-4447, ext. 15500

Fabry Support and Information Group
Email: jjohnson@fabry.org
URL: www.fabry.org
Phone: 660-463-1355

Genetic Alliance
Email: info@geneticalliance.org
URL: www.geneticalliance.org
Phone: 202-966-5557, 800-336-GENE (-4363)

International Patient Advocacy Association
Email: ivp.ipaa@att.net
URL: www.vanpelt-ipaa.com
Phone: 425-462-4037

National Institute of Neurological Disorders and Stroke (NINDS)
Email: National Institutes of Health
URL: www.ninds.nih.gov/disorders/fabrys/fabrys.htm

National Institutes of Health (NIH)
URL: www.nlm.nih.gov

National Kidney Foundation
URL: www.kidney.org/
Phone: 1-800-622-9010, 212-889-2210

National Organization for Rare Disorders (NORD)
Email: orphan@rarediseases.org
URL: www.rarediseases.org
Phone: 203-746-6518, 800-999-NORD (-6673)

New York University School of Medicine
Email: Division of Neurogenetics/Fabry Disease Program
URL: www.med.nyu.edu/patientcare/patients/library/article.html?ChunkIID=23863
Phone: 212-263-8344

The National Fabry Disease Foundation
Email: info@TheNFDF.org
URL: www.thenfdf.org
Phone: 1-800-651-9131